This has been weighing heavily on my mind recently as Avery turns four tomorrow. I have had Parkinson's for her entire life. She'll never know Bryan Roberts: the guy who was a stud athlete; Bryan Roberts: the guy who never got sick; Bryan Roberts: the guy who almost chose military service over college; Bryan Roberts: the guy who dated the underwear model with shaky moral values (she is probably better off not knowing about this), etc.
Last Wednesday night I found myself at a Michael J. Fox Foundation fundraiser standing next to Michael's son, Sam (not to be confused with the other Sam Fox who runs long distances and climbs mountains for sport). We got to talking and after a while of discussion, started talking about raising kids while having Parkinson's disease. I disclosed my fear of seriously messing her up and then Sam put my mind at ease. He said:
"Growing up it wasn't dad who has Parkinson's disease. Dad is just dad."
That simple phrase really put things in perspective. My daughter won't know what I was or what I am not, she will just know that I'm her father and I love her very much. Parkinson's disease may be a disease of diminishment but it doesn't have to be. Some roles, like a parent, are too big to be diminished.
So, happy birthday, Young Roberts--your dad loves you and is incredibly proud of you.
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